"Convention for MS researchers opens in Boston" by Robert Weisman | Globe Staff September 11, 2014
The survey found many patients seek more information online or through social media, while neurologists tend to underestimate their patients’ discomfort talking about symptoms of the neurodegenerative disease, which range from muscle spasms to bladder or bowel problems to difficulty walking. At least 400,000 people in the United States and more than 2.3 million worldwide have been diagnosed with MS.
Kristen Adams, a former “Good Morning America” producer who was diagnosed with the disease in 2008, told a Tuesday night pre-conference briefing hosted by Cambridge biotech Genzyme that the majority of MS patients have symptoms that are invisible to others.
“You can’t see the fatigue, the dizziness, the numbness, the depression,” Adams said. “There are a whole lot of people like me walking around.” She said MS medicines on the market help to prevent relapses but don’t address such symptoms as fatigue....
Can you get it from reading a newspaper because that is my symptomology.
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